Wednesday, July 30, 2008
barkeep - I'll take a vodka with lyme.
well - you haven't heard from me for a while - and I'm guessing that some of you picked up the spelling that I used for the title. When I left Manchester Center, my knee pain was gone - I had however started a bit of a headache. I rarely get headaches and with 800mg of advil 3 times a day for the knee, was surprised that I would have one. Assuming it was just from caffeine since I had been in town for 3 days. I hiked on. As each day passed - I felt worse. No appetite, no power, very lethargic, my neck started to tighten, and then the headache got out of control. Would normally be a 7-8 out of 10, then every few mins would jump up to 12 out of 10 and I would wince out loud. Advil all day helped take the edge off of it. Was trying to hike to Rutland VT to get to the hospital. Of course had to go over the tallest peak in the state (Mt. Killington) to do it. : ) Was able to call a trail maintaineer to come get me and drop me off at the hospital. Myself and 2 Dr's all felt it was Lyme Disease. By this point I had a large rash on my left foot (the rash and headache are the key's). They drew blood and sent it off - takes a few days to get results back. They were worried that it might be Lyme Meningitis - so they gave me a CT head scan - and then - oh yeah - got to have a spinal tap. (not talking about the kick ass band with amps that go to 11). Spinal tap showed 10 white blood cells - should be none, but kind of a rounding error. As the next day went on, my nose and lip became numb, my right eye dropped and swelled, and I couldn't control/use all of the muscles in the right side of my face. They brought in a Neurologist for some tests and we upped my Lyme antibiotics to an IV based one vs the oral one. Just got the results back - it is Lyme Menegitis. Going to have to have a Pick Line installed as I am going to have to be on the IV meds for 3 weeks. Have met with a social worker to look at housing options - or might fly home. Have put about 12 bags of fluid in me - took 4 or 5 before I had to pee the first night - so I was very dry! Fluid and food - feeling better - but the moment the pain med wears off - my headache comes screaming back - so something is still causing inflammation of my brain. I'll be honest, didn't exactly plan on this. Several people out here have gotten Lyme - but they have been able to take pills and keep on hiking - everyone knows that when I do something - I go all out - so why not have it attack my brain! The hospital is great and have let me borrow a laptop so I can check in with you and let you know what is going on. No game plan yet and please don't ask me about the million dollar question - I'm not making decisions for another day or so. Spirits are still high, but also understand reality. Just part of my journey right now. Kind of ironic though - I'm dealing with the heat, cold, rain, topography, physical challenge, and even mentally holding my shit together - and it might fall apart thanks to a creepy crawly smaller than a freckle. I'm at Rutland Regional Medical Center 160 Allen Street, Rutland Vermont, 05701. room 212 802-775-7111